Spending this week at the a2 Collective | a2PilotAwards.ai National Symposium in DC, focused on AI, aging, and the future of care. Panelists Dr. Jason Karlawish and I. Glenn Cohen’s insights truly helped me think about privacy in new and forward thinking ways. One key takeaway from this morning’s dementia session: we’re generating far more health data than our systems are designed to govern. Not just in clinics—but continuously, through everyday life, and increasingly long before clinical symptoms appear. Which raises a harder question: Who actually owns and advocates for that data as patients’ needs evolve? • Consent today is largely static—but cognitive decline is not • Caregivers step in over time, but alignment isn’t always straightforward • Data spans health systems, tech, and insurers—with no clear steward One idea that stood out: the need for a trusted data fiduciary—a model built to represent the patient’s interests across that entire journey. Because in this space, innovation isn’t just about earlier detection—it’s about trust, agency, and dignity over time. Before this session, I knew this was an important issue for my EVRKind™ — The Caregiver Operating System —but walking out, I have a much clearer perspective on human in the loop processes, data governance, and the need for transparency with consumers of how data is utilized. In what I’m building around caregivers, it reinforces the need to design clear, patient-controlled decision points—where individuals can determine how their data is shared, and when a caregiver is enabled (or not) as a fiduciary over time. What are your thoughts on creating a patient data fiduciary—and how would that be implemented? #AI #Agetech #Innovation #Data
AI, Aging, and Data Governance at a2 Collective Symposium
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My study would be: which source do you select for health information seeking, how long does it take between formulating the question and getting an answer, and how trustworthy does does the answer seem... "1-click" AI may be perceived to have advantages over other sources for sheer immediacy.
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